Update And A Sorry !!

I'm sorry that I haven't updated my blog in quite a while. I haven't been feeling too well lately and have been pretty busy trying to sort things out with school. I feel so bad for neglecting my blog but hope you will all understand!

It's the Summer holidays over here in the UK at the moment and i'm SO glad that they have finally arrived! It's SO nice to be able to relax and not have to worry about getting up at 7am every morning to get ready for school when i'm not feeling too good! We get 7 weeks off and will start school again about the 9th September.

It's hard to believe that when I go back to school, I will also be going to college to undertake the Health and Social Care Course!!

We had a meeting a few weeks back with my school, the school centre and college to see what I will be doing from September and I have been stressing about it ever since! My School are trying to force me into going back to school despite telling them god knows how many times that I cannot cope with all of the walking involved and that my so-called 'friends' haven't been in touch with me for nearly 2 years now!

My teachers keep saying that I HAVE to go back to do my Science lessons and Citizenship otherwise I will fail all of my exams so they have sort of got us over a barrel! I don't want to go back to school as that would risk making my health even worse again (everytime I go back I end up in some flare) but on the other hand, I really want to pass my exams!

The School has decided that I can go to the School centre still but I MUST go back for Science, Citizenship, RE and some other lessons so that will mean that from September, I will be all over the place!

On a Monday morning, I will be at college and then at school in the afternoon.
Tuesdays, I will be at the school centre and then school.
Wednesday, I will be at school in the morning and then college
Thursday, I will be at the school centre in the morning and then college
Fridays, I will be at the school centre and then school.

I have been really scared about going back to school. I just don't want to go back and risk making my health worse and my 'friends' have clearly demenstrated that they could care less about me! My teachers sort of forced me into going back - they told me that I could say if that was OK and that they would ask for my input but they never did and i'm not the sort of person that will say if i'm not happy with something - guess it comes from my Type A personality!

My mum is currently trying to enroll me into a Science course at home so hopefully that way, I wont have to worry about going back to school and can do that at home. The college course is going to be stressful enough so I don't need to worry about having to worry about anything else!!!

We have a meeting next week with my college tutors about the placements to see how they can best accomadate me so hopefully that will go well! They want to try and make sure that I am as safe as possible during the placements so that I don't risk making my RSD any worse. Some of the employees have been a bit worried about giving me placements because of my RSD but my mum works in childrens services so it worked out well in the end as she was able to find me some placements :-) !!

I had a Physio appointment yesterday. It was the first one I have had in a while as my Physios felt I needed a break to see if that would help any. It didn't unfortunately and my knee has still been creaking a lot.

My Physio's did some gentle exercises with me as my knee still wont move much and they were really painful! They are still wanting to look into Botox as a last resort but i'm not sure if I am willing to take the risk of making things worse, especially seeing as though the nerve block and ingrown toenail removal made me worse. We were told that if we decided to give the botox a shot, they would send me to Great Ormond Street Hospital in the UK as that is the leading childrens hospital and they have a specialist botox clinic so should know what they are doing.

It's such an hard decision to make, I really want the Dystonia to go away but on the other hand, I don't want to risk making my RSD worse or ending up being in a wheelchair again! I guess it's a matter of weighing up the pro's and con's and then making an informed decision.

I don't have an appointment to see my Physio's until the end of August now as they still feel that I need a break from physio to see if that would help any. They basically don't want to do too much work on me until the inflammation on my knee settles down which could take quite a while unfortunately.

My mum and I are off to Spain at the end of August so i'm really looking forward to that! We are going to see my grandad for a week so i'm hoping that the break will do us both some good! He has a pool also so hopefully, I might be able to do some pool work whilst there too!

Thanks for reading and I apologize again for not posting a lot lately - I'll make sure I post more soon!!